Testimonials from people and organisations who have worked with us.

“Employment group members have also significantly contributed to communication about the issue via webinars (both in the UK and globally), a pod cast on Long Covid and social media. They have also contributed to advocacy and policy to UK nation Chief Medical Officers as to the need for Long Covid services to be developed and research to be established. They have also assisted with creating NHS Long Covid clinic pathways as to return to work.”

Quinn Roache – TUC

“Their lived experiences was what drew me to them as our policy approach can be summarised by the term, ‘Nothing About us Without Us.’ However what has ensured we continue to work together is not only their lived experience but also their professional experience and understanding.”

Nick Pahl – SOM

“I cannot express how grateful I feel for having been offered this (support). It is difficult to advocate for yourself when feeling overwhelmed and unwell and to have knowledgeable, friendly and experienced support has made the process more manageable.”

Anonymous NHS Worker

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